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The Boy in the Moon
Ian Brown
其他書名
A Father's Search for His Disabled Son
出版Scribe Publications, 2010
主題Biography & Autobiography / Cultural, Ethnic & Regional / GeneralBiography & Autobiography / Personal MemoirsFamily & Relationships / Children with Special NeedsFamily & Relationships / Parenting / FatherhoodFamily & Relationships / Parenting / GeneralMedical / Public HealthMedical / GeneticsSocial Science / People with Disabilities
ISBN19216403329781921640339
URLhttp://books.google.com.hk/books?id=7dZTyFanb0YC&hl=&source=gbs_api
註釋Walker Brown was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps 300 people around the world also live with it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, can't speak and needs to wear special cuffs on his arms so that he can't continually hit himself. 'Sometimes watching him,' Brown writes, 'is like looking at the man in the moon Ð but you know there is actually no man there. But if Walker is so insubstantial, why does he feel so important? What is he trying to show me?'
In The Boy in the Moon, Brown sets out to answer that question, a journey that takes him into deeply touching and troubling territory. 'All I really want to know is what goes on inside his off-shaped head,' he writes, 'But every time I ask, he somehow persuades me to look into my own.'