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My Encounter with the Guillain-Barré Syndrome
Janez Mate
出版
Knjižnica Miklova hiša
, 2017
ISBN
9619345096
9789619345092
URL
http://books.google.com.hk/books?id=7qeVswEACAAJ&hl=&source=gbs_api
註釋
This book has been in the making for a year and a half. During the first six months the author directly experienced the Guillain-Barré syndrom, during his treatment and rehabilitation. During the next twelve months the rehabilitation process continued, and the last nine months of that period were also dedicated to writing. I travelled the path which many patients had travelled before me. Perhaps it is not a coincidece that this book saw the light of the day at the occasion of the hundredth anniversary of the first description of the Guillain-Barré syndrome. This book describes my experiences with the Guillain- Barré syndrom during the time of my hospitalisation at the Department of Neurology, and later during my rehabilitation at the University Rehabilitation Institute of the Republic of Slovenia - Soča. Especially during the second period I learned about experiences of fifteen other patients suffering from the same disease. The literature on Guillain- Barré syndrome in the Slovenian language is very limited, and it is rather difficult to get information about the onset of the disease, treatment, recovery and - most importantly - about dealing with the consequences of the disease. I have not been able to find any material giving experiences of the patients during the time of disease, and rehabilitation. As I would have appreciated especially additional information describing the direct experiences of patients, I decided to write about the journey I made, acompanied by GBS.