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Designing a Model Policy Framework for Privacy Challenges in Cell-based Research
Sarah Burningham
Timothy A. Caulfield
Ubaka Ogbogu
University of Alberta. Faculty of Law. Health Law and Science Policy Group
其他書名
Final Research Report
出版
University of Alberta, Faculty of Law
, 2013
URL
http://books.google.com.hk/books?id=H4OToAEACAAJ&hl=&source=gbs_api
註釋
"Recent advances in cell-based research, such as the development of induced pluripotent stem cells (iPSCs) and triploid human embryonic stem cells (hESCs), have generated excitement in both the general public and the scientific community, as researchers work towards realizing the full scientific, medical and economic potential of cell-based therapies and interventions. iPSCs are created from "reprogrammed" adult somatic cells and, being pluripotent, are able to differentiate into different cell types. Triploid hESCs are likewise pluripotent, but are created from human embryos However, developments in this field have been accompanied by complex ethical and legal problems. In particular, commentators have emphasized the need to protect the privacy of those who donate their biological material or health data for this type of research. iPSCs are genetically connected to the donor of the material from which the stem cells are derived. Thus, disclosure of the cell line or of associated data could expose that donor to privacy risks"--Page 3.