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Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder
註釋"Hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) are no longer seen as rare, hEDS is now considered the most prevalent type of heritable disorder of connective tissue in the world, thought to affect at least 1 in every 5000 people*, and the prevalence for association of generalised joint hypermobility and widespread pain is higher still*. This shift in understanding demands a different approach to information provision; one that is tailored specifically to those with hEDS and HSD, and which provides a clear, concise and balanced overview - a book that allows you to ‘see the woods from the trees!' Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified 'hypermobile Ehlers-Danlos syndrome' and 'hypermobility spectrum disorder.' The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more. From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management - if you ever wished that you could find all of the information you need, together, in one place... Look no further!"--Back cover.