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Diagnosis and Management of Spinal Muscular Atrophy
Richard S. Finkel
Eugenio Mercuri
Oscar H. Meyer
Anita K. Simonds
Mary K. Schroth
Robert J. Graham
Janbernd Kirschner
Susan T. Iannaccone
Thomas O. Crawford
Simon Woods
Francesco Muntoni
Brunhilde Wirth
Jacqueline Montes
Marion Main
Elena S. Mazzone
Michael G. Vitale
Brian D. Snyder
Susana Quijano-Roy
Enrico Bertini
R. Hurst Davis
Ying Qian
Thomas Sejersen
其他書名
Part 2
出版
Universität
, 2018
URL
http://books.google.com.hk/books?id=sIOvzwEACAAJ&hl=&source=gbs_api
註釋
Abstract: This is the second half of a two-part document updating the standard of care recommendations for spinal muscular atrophy published in 2007. This part includes updated recommendations on pulmonary management and acute care issues, and topics that have emerged in the last few years such as other organ involvement in the severe forms of spinal muscular atrophy and the role of medications. Ethical issues and the choice of palliative versus supportive care are also addressed. These recommendations are becoming increasingly relevant given recent clinical trials and the prospect that commercially available therapies will likely change the survival and natural history of this disease